Research Studies
AANE maintains this listing of current research for the community’s information and possible participation.
Please note:
- These research studies are external and are not run by nor affiliated with AANE.
- AANE is committed to identity-first language and non-medical language and approach but the research studies posted may not follow the same practices.
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Guidelines for Research Study Submission
- Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
- Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
- Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
- Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.
Researchers are invited to submit or make updates to a previously submitted study by using the button below.
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Dissociation & Maladaptive Daydreaming in Neurodivergent Adults
We at the Developmental Disabilities and Mental Health Laboratory at York University in Toronto, Canada are conducting a study on maladaptive daydreaming and dissociation in neurodivergent adults aged 18 and older. To our knowledge, this is one of the first studies examining maladaptive daydreaming and dissociation this comprehensively in autistic adults and individuals with ADHD. […]
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Exploring Sibling Relationship Quality and Identity Among Non-Autistic Young Adults With Autistic Siblings
Growing up with an autistic sibling shapes identity, relationships, and life experiences in meaningful ways. Researchers at the University of Alabama at Birmingham are conducting a study to better understand these experiences from your perspective. Who can participate? Non-autistic adults ages 18 – 40, who live in the U.S., and have one autistic sibling. Participants […]
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A comparative study of stress in parents of children diagnosed with Autism Spectrum Disorder (ASD): English learners vs. Non-English learners
This study examined levels of stress experienced by caregivers of children with ASD. Furthermore, it investigated to determine a difference in stress levels between EL and non-EL caregivers with children with ASD and if there is a difference in stress levels of caregivers of children with ASD based on their self-reported English proficiency levels. Participants […]
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Family Quality of Life in Autism Spectrum Disorder
What: Baylor University is recruiting caregivers of children diagnosed with ASD to participate in an online survey about family life and quality of life. Your voice will help improve tools used to support families like yours. Who is eligible: You’re 18+, English-speaking, and your child’s legal guardian Your child is 3–12 and has an ASD […]
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First CRUSH: Competence in Romance and Understanding Sexual Health
Researchers at Boston Children’s Hospital are looking for participants to test a new dating and sexuality curriculum designed for the specific needs of autistic adults. Participation will include an initial screening call (30 minutes). If eligible, you will be asked to participate in one phone call and three visits along with 20 CRUSH training sessions. […]
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Treating Trauma in Young Adult Autistic Women through Somatic Therapeutic Approaches
Several studies have been conducted looking into the subject of how trauma, either single event or multiple events, may create both psychological and physical symptoms in the body. The physical symptoms are a result of the body’s natural response to return itself back to functioning (self-regulation). Further research has identified somatic therapy, a validated therapy […]
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Symbols for all – Use of Augmentative and Alternative Communication (AAC) in Children with Complex Communication Needs. International Caregiver Survey
This study is led by Principal Investigator Professor Toby M. Long (Georgetown University) and conducted by Serena Pessolano, Visiting Scholar (Sponsored University Associate). It invites parents or primary caregivers (18 years or older) of children with complex communication needs to participate in an anonymous online survey. I am a Visiting Scholar at Georgetown University (Fulbright […]
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Chronic Pain Diagnosis and Management for Autistic Adults
We are doing interviews with both 1) autistic people who have experienced chronic pain and 2) providers who treat chronic pain and have worked with autistic patients. Through these interviews, we hope to learn about how to better support autistic people with chronic pain. If you are autistic and have experienced chronic pain (either now […]
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Impacts of Dual-Masking Autism and Gender-Diversity on Wellbeing
There are currently no studies that have specifically examined how masking (i.e. hiding) both autistic and gender-diverse traits impacts wellbeing. We are interested in exploring how gender-diverse folks on the autism spectrum believe masking these aspects of their identity has affected them, and we ask you to consider volunteering to participate. We are hoping to […]
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Emotions, Alexithymia and Theory of Mind
Purpose of the study: The study investigates how alexithymia, a trait characterized by difficulties in recognizing internal emotion states, relates to emotion recognition more broadly and to theory of mind (ToM), the capacity to understand the internal state of others. The study investigates this relationship in both autistic adults, including those who have a formal […]
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