Research Studies

AANE maintains this listing of current research for the community’s information and possible participation.

Please note:

  • These research studies are external and are not run by nor affiliated with AANE.
  • AANE is committed to identity-first language and non-medical language and approach but the research studies posted may not follow the same practices.

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Guidelines for Research Study Submission

  • Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
  • Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
  • Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
  • Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.

Researchers are invited to submit or make updates to a previously submitted study by using the button below.

  • Autism and Language Research Study

    Curious about your child’s brain development and how it relates to language, speech, and communication? If so, help us learn about how the brain relates to speech, language, and listening in children with and without Autism Spectrum Disorder (ASD). Who can Participate? Children who: Are 8-10 years in age (with or without a diagnosis of […]

  • Brain and Language Development in Autism

    The purpose of this research study is to better understand speech, language, and listening skills in children with and without autism, also referred to as autism spectrum disorder (ASD).The goal of this study to identify key differences in speech and language perception and production in children with autism. To reach this goal, we will use […]

  • Barriers to Diagnosis and Autistic Identity in Young Adults

    We are researchers at UMass Amherst seeking participants for the Barriers to Diagnosis and Autistic Identity in Young Adults (Protocol #7211) study. This study visit includes one, 2.5 hour lab visit where you will complete questionnaires and be administered the Autism Diagnostic Observation Schedule-2, which is a series of tasks and interview questions. If you […]

  • Exploring the Identity Development and Coping Experiences of Neurodivergent Queer Couples

    The purpose of this project is to explore the experiences neurodivergent queer couples, with a particular focus on their experiences as a couple and how they navigate stress and support related to their individual and couple identities. Name of Organization: Double Rainbow Research Lab For questions, please email:: [email protected] Study Link:  https://umassboston.co1.qualtrics.com/jfe/form/SV_eECYw3t8baWAA4e

  • Masking, Authenticity, Loneliness, and Wellbeing Across Neurotypes

    This anonymous online study explores how masking/camouflaging, authenticity, loneliness, and wellbeing relate to one another across different neurotypes and lived experiences. It focuses particularly on autistic, ADHD, and AuDHD adults, while also including otherwise neurodivergent, questioning, and non-neurodivergent adults. The study asks about experiences such as camouflaging neurodivergent traits, managing social expectations, feeling able to […]

  • Autistic Young Adults’ Experiences with School-Based Sex Education

    This study aims to better understand autistic young adults’ experiences with school-based sex education and identify ways to make sex education more accessible and inclusive. Who Can Participate? – Autistic young adults ages 18–21 who received sex education in high school What Does Participation Involve? – Completing screening and demographic forms – One virtual interview […]

  • Positive Mental Health and Resilience in Autistic Teens

    This is a virtual study that aims to understand positive mental health factors that may protect against anxiety and depression in autistic adolescents. Both an autistic teen and an accompanying guardian would participate. We are looking for teens between the ages of 12 and 17 with documented diagnoses of autism spectrum disorder (ASD), and who […]

  • Perceptions of the therapeutic relationship: An exploratory study in autistic adults and non-autistic therapists

    My name is Samantha Martin, and I am a doctoral student working with Dr. Shalini Sivathasan in the Boston College Intersections Lab. We are conducting a research study that aims to learn more about the experiences of autistic adults and non-autistic therapists in psychotherapy. Our lab, which is composed of both autistic and non-autistic researchers, […]

  • Patience in Parenting

    This online, survey study is about understanding the experiences of parents and caregivers raising adolescents with intellectual and developmental disabilities (IDDs), including autism, during the transition from adolescence to adulthood. Researchers are interested in learning more about patience, stress, support, well-being, and parent-child relationships over time, as families navigate educational, healthcare, community, and future planning […]

  • The TEAM Study – Treatment Efficacy for Autism/Attention using Mixed Amphetamine Salts

    Massachusetts General Hospital is conducting a 10-week brain imaging and medication study. We are doing the research to study the response of ADHD in youth with ASD on extended-release formulation of mixed amphetamine salts (MAS) (also known as Adderall XR). We also want to find out if taking MAS has any effect on the brains […]

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