Research Studies
AANE maintains this listing of current research for the community’s information and possible participation.
Please note:
- These research studies are external and are not run by nor affiliated with AANE.
- AANE is committed to identity-first language and non-medical language and approach but the research studies posted may not follow the same practices.
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Guidelines for Research Study Submission
- Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
- Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
- Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
- Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.
Researchers are invited to submit or make updates to a previously submitted study by using the button below.
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Workplace Inclusion for Autistic Human Services Workers
This study seeks to understand the barriers and facilitators of workplace inclusion and wellbeing for autistic human services workers in Canada and the United States. It is the first large-scale study to examine these topics, thus the results will offer new knowledge and most importantly inform efforts to promote the inclusion of autistic human services […]
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Autistic Identity Development
Hello, my name is Andrea Fanta, and I am a PhD candidate in the Department of Human Development and Family Studies (HDFS) at the University of Illinois. I am currently embarking on a research project focused on autistic identity development. My goal is to understand the practices parents use to support autistic identity during middle […]
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Patient Supported Approaches to Gene Editing (PaSAGE) Study
We are conducting an NIH-funded study to elicit the views, ethical concerns, and clinical aspirations of key stakeholder groups on prenatal gene editing technologies. Though prenatal gene editing is not currently being done in humans, it is possible that it will be available in the future, at least in a research setting. We, as a […]
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Hiding in Plain Sight: Exploring Environmental Factors of Camouflage and Autism Diagnosis
Recent research suggests that some autistic individuals may never be diagnosed with the condition. This study aims to identify how environmental factors contribute to developing camouflaging behaviors and potential delays in autism diagnoses. We seek to include diverse perspectives, particularly from those traditionally overlooked or excluded, such as women and gender-nonconforming individuals. Name of Organization: […]
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Autism and Weight Communications Study
Looking for autistic young adults to participate in a study to understand their experiences with negative comments or different treatment because of having a larger body size. Participants must be between 18 and 25 years old, have a clinical diagnosis of autism, and be willing to complete an online survey and participate in an online […]
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Ready to Connect
The FACE Lab at Emerson College is launching a new virtual study in partnership with the University of Connecticut and the Children’s Hospital of Philadelphia. We are excited to tell you about a study focused on conversations in autistic and non-autistic children ages 12-15 years and their families. If you are eligible to participate in […]
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Policies for Reproductive Outcomes in Medicaid–Improving Services for Enrollees with Intellectual and Developmental Disabilities (PROMISE-IDD)
PROMISE IDD combines a national pregnancy dataset with interviews of people with IDD who used Medicaid during pregnancy. Our goal is to identify the best healthcare practices and policies that can reduce pregnancy-related health problems in Medicaid-enrolled women with IDD. We want to hear about your pregnancy experience for our research study. We are looking […]
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A Qualitative Descriptive study on the impact of respite care on the quality of life of parents of children with autism spectrum disorder.
My name is Benjamin Ani, and I am a doctoral student at National University. I am conducting an online qualitative descriptive study on the impact of respite care on the quality of life of parents of children with autism spectrum disorder. To participate, you must be 18 years or older, live in the State of […]
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Project Pathways: Mapping the Trajectories of Immigrants with Disabilities
Researchers at the University of Maryland College Park and Towson University are seeking immigrant autistic adults for interviews! Who Can Participate? To participate, you must: (1) Be 18 years old or older; (2) Be on the autism spectrum (including Asperger’s); (3) Be a foreign-born resident of the United States** What Will Happen? We will conduct […]
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Well-Being and Traumatic Experiences in Autistic Youth
We are looking for autistic youth (14-21 years old) and/or their parents to participate in a study about experiences of mental health, trauma, and well-being in autistic youth. Participants will take part in a one-time interview (online or in person, between 30-60 minutes) and complete a short survey. For youth, we can do the interview […]
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