Research Studies
AANE maintains this listing of current research for the community’s information and possible participation.
Please note:
- These research studies are external and are not run by nor affiliated with AANE.
- AANE is committed to identity-first language and non-medical language and approach but the research studies posted may not follow the same practices.
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Guidelines for Research Study Submission
- Studies conducted in the United States should be reviewed and approved by an Institutional Review Board (IRB).
- Studies conducted outside of the United States should be reviewed and approved by a comparable independent organization.
- Studies will be posted on this page within 5 to 7 business days after the form is submitted if the study is consistent with AANE’s mission and values.
- Research studies will be removed from this page approximately one year after being posted unless a different timeframe is specified.
Researchers are invited to submit or make updates to a previously submitted study by using the button below.
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Unmasking Identity: Exploring It’s Role in the Mental Health of Black Autistic Emerging Adults
This study will show how black people regard, autistic identity influence anxiety and depression symptoms in Black autistic emerging adults. Coping mechanisms such as masking and africultural coping will also be tested to show how they moderate the relationship between identity and the prevalence of mental health conditions in this population. Name of Organization: The […]
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Parental Perspectives on Eating & Mealtime Behaviors in African American Children with Autism
About the Study: The purpose of this study is to better understand African American parents’ experiences, challenges, and successes related to child feeding and managing mealtimes when raising an African American child (4-17 years old) with ASD. Insights from this study will be used to inform culturally competent nutrition education and support programs that can […]
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Brain and Reading Enhancement in Autism Spectrum Disorder (BrainREAD)
This National Institute of Health (NIH)-funded project tests the efficacy of a rigorous reading intervention on reading comprehension and brain responses in autistic and non-autistic children with comprehension difficulties. Participants will receive an intervention through Lindamood-Bell Learning Processes called Visualizing and Verbalizing (V/V) for Language Comprehension and Thinking. In our previous studies, we have found […]
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Identity in Autistic Youth
We are conducting a research study exploring gender identity and related experiences in autistic children ages 9-12. The study involves: – A semi-structured interview with the child about their understanding of gender and gender identity – A gender stereotype endorsement task for the child – A brief parent interview about their child’s social responsiveness, repetitive […]
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How Can Mental Health Services Better Support Autistic Adults?
Are you an autistic person/person with autism who has had psychotherapy or mental health counseling as an adult? We are looking for participants to complete an anonymous survey about how mental health clinicians can make sessions better for autistic adults/adults with autism. You may qualify if you: -Are at least 18 years old -Self-identify as […]
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The Caregiving Experience: Comparing Stress and Quality of Life Among Caregivers of Children With and Without Autism Spectrum Disorder
I am conducting IRB approved research titled “The Caregiving Experience: Comparing Stress and Quality of Life Among Caregivers of Children With and Without Autism Spectrum Disorder.” This study examines caregiving experiences to inform the development of counseling interventions and support services for families. Study Overview: 20 to 25 minute anonymous online survey Examines caregiving stress, […]
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Influence of Family Systems on AAC Use in Individuals with Non-Verbal, Minimally Verbal and Late-Speaking Autism Spectrum Disorder
One of the most effective interventions for speech delays is Augmentative and Alternative Communication (AAC), or speech aids. However, there is also a lot we do not know about these devices. For example, there are questions as to how accessible they are and factors that may increase or decrease their effectiveness in improving communication. My […]
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Expressive Writing Study to Cope with LGBTQ+ Stigma
This is a challenging time for LGBTQ+ individuals, and your organization plays a crucial role in supporting the community. In our research lab at the University of Massachusetts Boston, we have developed online expressive writing exercises to help sexual and gender minorities process experiences of transphobia and heterosexism and develop strategies to deal with them. […]
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Understanding Well-Being in Families of Autistic Individuals
Researchers from the University of Virginia are looking for caregivers (18 or older) of children/adults with autism to participate in a ~15 minute research study, which will be conducted through an online survey. In the study, you will be asked questions about your experience as a caregiver and related personal attitudes about yourself and your […]
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Challenges of Adults with Autism Spectrum Disorder
Seeking adults (18-30) diagnosed with autism before age 18 and parents of adults with autism (same criteria) to take a 20-30 minute survey and optional follow-up interview. The purpose of the research is to investigate current adult support and services for individuals with Autism Spectrum Disorder. This study will expand the research on adults with […]
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